Resources

ALS Support and Education

See our list of resources for ALS caregivers, physicians, and family members.

ALS Association

The ALS Association offers a variety of local support, including programs such as equipment loans and referrals to local medical professionals. We can also help you find a local treatment center or clinic, or support group.

Get Support

My ALS Journey Tool

My ALS Journey™ is an interactive, web-based tool that allows people living with ALS to take control of their journey with the disease.

Access the Tool

Mental Health America in Montgomery ALS Trainings

Breaking the News
Support for MDs and other medical practitioners on delivering an ALS diagnosis and discussing difficult news.

Global Neuro Y Care – Children’s Resources
The foundation was created based on collaborative work across countries, with children and families living with neurological conditions. As a licensed clinical social worker and social work researcher with families around the globe, Dr. Kavanaugh and team have developed tools for children, youth, and families

Hope Loves Company – Support for Youth
Hope Loves Company is a nationally recognized nonprofit that provides support, resources and community to children who have or had a loved one with ALS. We give children and young adult caregivers the tools they need to navigate grief, find joy, and remain hopeful.

International Alliance of ALS/ MND Associations
The Alliance is a global network of ALS/MND associations informed by PALS/CALS, that builds capability for its members and connects to external stakeholders.

International NeuroPalliative Care Society (INPCS)
The overarching purpose of the International Neuropalliative Care Society (INPCS) is to foster the growth of this field by creating a community. Activities of INPCS include building professional networks, supporting research, developing educational materials and opportunities, creating guidelines for clinical practice, and advocacy.

Report Urges Immediate and Longer-Term Actions to Improve Quality of Health Care and Support Services for People with ALS, Speed Development of Therapies
A new congressionally mandated report from the National Academies of Sciences, Engineering, and Medicine recommends actions Congress, federal agencies, insurers, and others should take to strengthen health care and support services for people with amyotrophic lateral sclerosis (ALS) and accelerate research on therapies for the disease — with the goal of turning ALS into a livable disease within a decade. 

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